A violent stigma for mentally ill

From The Irish Times
By Carl O’Brien
Monday, August 24, 2010

John McCarthy via Irish TimesPsychiatric nurses argue that more staff are needed to manage violent patients – but are patients with mental illness any more violent than the rest of the community?

When the union representing psychiatric nurses launched a campaign for extra staff earlier this month, it painted a disturbing and violent portrait of life on the wards of our mental hospitals.

Due largely to hundreds of staff vacancies, the union argued, there has been a sharp increase in assaults on members of staff. It said 1,314 assaults on staff were recorded last year, up from 966 in 2007 and 1,104 in 2008.

On one occasion eight gardaí in riot gear had to come to the assistance of nurses trying to manage a highly aggressive patient at St Brendan’s Hospital in Dublin. In Ennis, it says, a single patient was being managed 24 hours a day by security staff due to a shortage of nurses and secure facilities.

The result, the Psychiatric Nurses Association said, was that patients suffering from depression, anxiety and bipolar disorder were having their recovery threatened by this “frightening and threatening hospital environment”.

The picture depicted by the union, however, has been criticized by some mental health campaigners. John McCarthy, founder of the Mad Pride movement, says the behavior of a small minority of patients has been used to further nurses’ demands for higher staffing levels and better working conditions.

The collateral damage, he says, is that efforts to reduce stigma against people with mental health problems are being undermined.

Tagged with:
 

Madness Radio: Bipolar Medication Myths

From Madness Radio
Thursday, August 26, 2010

Madness RadioIs bipolar disorder a disease? Can medications like lithium correct chemical imbalances and stabilize mood? Do psychiatric drugs act completely differently on the brain than recreational drugs? UK psychiatrist Dr. Joanna Moncrieff, author of The Myth Of The Chemical Cure: A Critique of Psychiatric Drug Treatment, discusses how seeing psychiatric medications as treatments for disease misleads the public about how they actually work, and obscures their potential for abuse as tools of social control.

Tagged with:
 

Cooley Dickinson transfers behavioral health services

From The Republican
By Fred Contrada
Thursday, July 29, 2010

Following a trend that has seen other hospitals sever their connections with outpatient mental health and substance abuse programs, Cooley Dickinson Hospital is turning over its behavioral health services to a nonprofit provider.

Clinical and Support Options, a Greenfield-based agency, will assume management of Cooley Dickinson’s behavioral health programs, most of which are based at 10 Main St. in Florence and at 170 University Drive in Amherst. The agency will also manage the response team located in the hospital’s emergency department, which treats people with emergency mental health and substance abuse needs.

Leesa-Lee Keith, Chief Nursing Officer and Vice President of Patient Care at Cooley Dickinson said most hospital employees working in those programs will transfer to Clinical and Support Options and see patients in the same locations.

“We want, for both the clinicians and the patients, to make this as seamless as possible,” she said.

Poor Children Likelier to Get Antipsychotics

From the New York Times
Friday, December 11, 2009
By Duff Wilson

Image care of the New York TimesNew federally financed drug research reveals a stark disparity: children covered by Medicaid are given powerful antipsychotic medicines at a rate four times higher than children whose parents have private insurance. And the Medicaid children are more likely to receive the drugs for less severe conditions than their middle-class counterparts, the data shows.

Those findings, by a team from Rutgers and Columbia, are almost certain to add fuel to a long-running debate. Do too many children from poor families receive powerful psychiatric drugs not because they actually need them — but because it is deemed the most efficient and cost-effective way to control problems that may be handled much differently for middle-class children?

The questions go beyond the psychological impact on Medicaid children, serious as that may be. Antipsychotic drugs can also have severe physical side effects, causing drastic weight gain and metabolic changes resulting in lifelong physical problems.

On Tuesday, a pediatric advisory committee to the Food and Drug Administration met to discuss the health risks for all children who take antipsychotics. The panel will consider recommending new label warnings for the drugs, which are now used by an estimated 300,000 people under age 18 in this country, counting both Medicaid patients and those with private insurance.

Tagged with:
 

Bait & Switch

From Kirby on the Loose
Wednesday, December 9, 2009

Image via Kirby on the Loose

Image via Kirby on the Loose

Bait and Switch at the Village?

A lot of people put in applications at the Hilltop Apartments on Village Hill when it opened three years ago, drawn by assurances from its developer, Community Builders, that its apartments would remain affordable. Hilltop has many nice apartments, the upper floors have terrific views, but it still has an institutional air to it. Long windowless corridors, no community space to speak of.

Bill “W” lives there, for now. He is a recovered alcoholic, works in food service in a supermarket. The pace is fast, he deals with the public directly, he works hard, puts in a full forty hour week and sometimes a weekend shift. He earns about $26,000 a year. For the last three years, almost since it opened, he has lived there. It was a big step up from a chaotic druggy rooming house on Green Street where he used to live. Community Builders engineered an $8 million rebuild of the old nurses quarters at the State Hospital, creating 33 apartments. Of the 33 units, 18 were supposed to be low income housing units, 8 would be for Department of Mental Health clients, and seven would be market level. The rents varied, based on your income and the square-footage of the apartments. The range of monthly rents in 2006 were $645 – $850 for a one bedroom apartments, $626 to $1050 for a two bedroom, and $1,050 for the lone three bedroom unit.

Tagged with:
 

Listening to Madness

From Newsweek
by Alissa Quart
Saturday, May 2, 2009

Why some mentally ill patients are rejecting their medication and making the case for ‘mad pride.’

madlibs_slah-verticalWe don’t want to be normal,” Will Hall tells me. The 43-year-old has been diagnosed as schizophrenic, and doctors have prescribed antipsychotic medication for him. But Hall would rather value his mentally extreme states than try to suppress them, so he doesn’t take his meds. Instead, he practices yoga and avoids coffee and sugar. He is delicate and thin, with dark plum polish on his fingernails and black fashion sneakers on his feet, his half Native American ancestry evident in his dark hair and dark eyes. Cultivated and charismatic, he is also unusually energetic, so much so that he seems to be vibrating even when sitting still.

I met Hall one night at the offices of the Icarus Project in Manhattan. He became a leader of the group—a “mad pride” collective—in 2005 as a way to promote the idea that mental-health diagnoses like bipolar disorder are “dangerous gifts” rather than illnesses. While we talked, members of the group—Icaristas, as they call themselves—scurried around in the purple-painted office, collating mad-pride fliers. Hall explained how the medical establishment has for too long relied heavily on medication and repression of behavior of those deemed “not normal.” Icarus and groups like it are challenging the science that psychiatry says is on its side. Hall believes that psychiatrists are prone to making arbitrary distinctions between “crazy” and “healthy,” and to using medication as tranquilizers.

Tagged with:
 

A talk with Judi Chamberlin

Facing death, a plea for the dignity of psychiatric patients

From the Boston Globe
by Carey Goldberg
Sunday, March 22, 2009

“NOTHING ABOUT US Without Us.”

That is the motto of a grass-roots movement that has carried various names over the last generation, but has always revolved around a single principle: self-determination for people diagnosed with mental illness. Call them psychiatric patients or consumers or survivors, they are fighting together to gain more control over their treatment, and more say in the mental health system overall. And they have won some striking successes in recent years, gaining more input into official policy and creating new jobs for people who, 12-step-style, have recovered from the worst of their illness and now want to help others in crisis.

The mother of that movement, many people would say, is Judi Chamberlin of Arlington.

Chamberlin was hospitalized against her will for depression in 1966, and shocked by how she was treated. Her seminal book, “On Our Own: Patient-Controlled Alternatives to the Mental Health System,” came out in 1978, and became a manifesto for the movement. Chamberlin’s activism for patients’ rights spanned the next 31 years, and evolved with the history of mental health treatment in this country.

At first, in a system that relied heavily on state hospitals, she focused largely on protecting inpatients’ basic rights. As “deinstitutionalization” took hold and the hospitals emptied, she focused more on outpatients’ needs for services and dignity as well. She also joined forces with activists for people with physical disabilities, and extended her reach internationally, helping push a treaty on disability rights that the United Nations passed in 2006.

Tagged with:
 

Lilly Said to Be Near $1.4 Billion U.S. Settlement

From The New York Times
by Gardiner Harris and Alex Berenson
Thursday, January 14, 2009

Zyprexa Whistleblower

Eli Lilly, the drug company, is expected to agree as soon as Thursday to pay $1.4 billion to settle criminal and civil charges that it illegally marketed its blockbuster antipsychotic drug Zyprexa for unauthorized use in patients particularly vulnerable to its risky side effects.

Details of the agreement were provided by people involved in the negotiations.

Among the charges, Lilly has been accused of a scheme stretching for years to persuade doctors to prescribe Zyprexa to two categories of patients — children and the elderly — for whom the drug was not federally approved and in whom its use was especially risky.

In one marketing effort, the company urged geriatricians to use Zyprexa to sedate unruly nursing home patients so as to reduce “nursing time and effort,” according to court documents. Like other antipsychotic drugs, Zyprexa increases the risks of sudden death, heart failure and life-threatening infections like pneumonia in elderly patients with dementia-related psychosis.

Tagged with:
 

Northampton Decree

DMH Memorial PanelI had the pleasure of attending a Memorial put on by the Department of Mental Health (DMH) last week to celebrate the 30th anniversary of the 1978 Brewster Consent Decree which began the process of closing Northampton State Hospital by stipulating that people with mental illness had the right to live and be treated in the least restrictive environment possible. I felt the speech given by Rebecca Macauley was especially apt and moving, and I have a recording made by WFCR (the local National Public Radio station) of the first half of the event. I will post the audio as soon as I get a chance to clean it up and cut it into sections.

Brewster Consent Decree at Washington University School of Law

Updated

  1. Dedication by Rev. Peter Ives, First Churches of Northampton.

    Audio clip: Adobe Flash Player (version 9 or above) is required to play this audio clip. Download the latest version here. You also need to have JavaScript enabled in your browser.

  2. Barbara Leadholm, DMH Commissioner.

    Audio clip: Adobe Flash Player (version 9 or above) is required to play this audio clip. Download the latest version here. You also need to have JavaScript enabled in your browser.

  3. Elaine Hill, DMH deputy Commissioner.

    Audio clip: Adobe Flash Player (version 9 or above) is required to play this audio clip. Download the latest version here. You also need to have JavaScript enabled in your browser.

  4. Rebecca Macauley, Ex-patient, Security Guard and Advocate.

    Audio clip: Adobe Flash Player (version 9 or above) is required to play this audio clip. Download the latest version here. You also need to have JavaScript enabled in your browser.

  5. Elizabeth Cardona, Director, Western MA Office of the Governor.

    Audio clip: Adobe Flash Player (version 9 or above) is required to play this audio clip. Download the latest version here. You also need to have JavaScript enabled in your browser.

  6. Robert Fleischner, Center for Public Representation.

    Audio clip: Adobe Flash Player (version 9 or above) is required to play this audio clip. Download the latest version here. You also need to have JavaScript enabled in your browser.

Tagged with:
 

Healing Voices

From Forbes Magazine
Edited by Richard C. Morais
Friday, August 29, 2008

Will Hall

Will Hall

Profession: Graduate student
Cause: Treatment alternatives for mental illness

Why I was moved to support this cause:

Since I was a child I’ve struggled with extreme emotions, voices and powerful out of body experiences. I remember falling to the ground once in third grade, writhing in agony because I believed something was grabbing my back. I saw cartoons projected on the ceiling, and my fear was sometimes so strong I fell mute. I often hid away, alone, overwhelmed and unable to describe what was going on.

At age 26, I hit a breaking point and wandered the streets of San Francisco all night hearing angry voices telling me to kill myself. I ended up on a locked psychiatric ward. For the next year, I was in and out of hospitals and homeless shelters.

My diagnosis was schizoaffective schizophrenia, and the treatment was powerful anti-psychotic medications. What the doctors had to offer didn’t help me, however. I left the hospital with more problems than I had going in, and I had to cope with the trauma of restraints, seclusion, plus a stigmatizing label that offered little hope for the future.

With nowhere to turn, I started to search for an answer on my own. In 2000, some friends in the Northampton, Mass., area let me stay with them, and I got a job in a local convenience store. Then I worked in a bookstore. The daily routine of a job, getting away from the memories in San Francisco, the small town tempo–it all helped. Step by step, over these difficult years, I learned a different way of responding to my madness.

Story Continues…
Also see Freedom to Heal, a video about the Freedom Center featured with this article.

Tagged with:
 

Flickr Group

See more...